The Policy and Campaigns Officer will develop policy positions and campaigns that will help ensure that the needs, rights and priorities of those living with DMD are understood and acted on by decision makers, policy makers, parliament and government. The Officer will work closely with colleagues in the Policy and Communications team to support a cohesive and impactful approach to policy, engagement and communications.

Job Description

• To ensure that the charity’s policy and campaigning work is firmly grounded in the views and experiences of the DMD community and to ensure that they are consulted and involved in the development (and delivery where appropriate) of Duchenne UK’s policy positions and campaigns.
• To maximise the benefits of our existing relationships with civil servants, parliamentarians, policy makers, relevant organisations (such as NICE) and charity sector professionals and to create new relationships which help us to achieve our aims.
• To organise events and parliamentary activity working with parliamentary supporters and the DMD community.
• To devise low-budget campaigns aimed at creating positive change in policy, practice or attitudes that will improve the lives and outcomes of those living with DMD.
• To create campaign assets such as digital and social media content in collaboration with the communications team.
• To draft consultation responses, policy positions and occasional short reports summarising the findings of research we have conducted or commissioned.
• To monitor relevant government proposals and initiatives, identifying those likely to have a major impact on the lives of those living with DMD, and to seek to influence their development.
• To stay abreast of relevant academic research, build relationships with key academics and identify opportunities for collaboration.